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I have Narcolepsy. Somewhat under control with Dextroamphetamine, 70 MG per day. More to keep the cataplexy away than keeping me awake. I can stop and fall asleep anywhere any time. I take two different antidepressants, and 50 MG of Trazadone for sleep. However, it really doesn't keep away the dreaming, which keeps my husband awake. I usually don't remember dreaming, so I'm not sure how much sleep I really get. I have tried so many drugs, and nothing seems to work very well. I also have psoriatic arthritis. It required me to have a disk fusion Jauary of 2007. And I'm now fighting it again. The arthritis builds up in my spinal canal and when I am active my muscles swell which creates a restriction on my spinal cord. It makes my arms and fingers numb most of the time and causes me to lose my legs sometimes. Lately my lower back has really been painful. It is the worst when I bend over alot. Or even from sitting alot. I don't know if this is an issue with the psoriasis or not. I am usually very active, I have a farm with horses, chickens, dogs, cats, and sometimes a cow or two. I only have 10 Acres, but I'm having trouble keeping up with everything. Feeding, irrigating, cleaning, weeding, garden preparation, etc. I watch three grand children 7, 5, & 4, two or three days a week. Now my husband and myself are having eye and teeth problems. I had all my teeth pulled and had dentures in 1995. But they are almost worn out. My husband has always had good teeth, but they seem to have worn off the hard coating and he is having sensativity issues. Both of us need glasses, my husband has worn glasses since 1983, he needs to get a new prescription, and I have recently been having trouble reading. I use store bought glasses but they seem to be not working. And the insurance we have through Medicare does'nt provide for them. We live as best we can on Social Security. Because of these medical problems, I have lost a job I loved, that I worked very hard and long for, and destroyed my dreams of raising western trail/competition horses. And has dropped our income to nearly nothing. My "American Dream" has been stolen from me. My Narcolepsy was the reason I lost my dream job in 2001. Then the neck fusion stole my horse riding. The cataplexy makes it necessary to avoid riding as well. I've lost the few friends I had, because the cataplexy scared most of them, to avoid the cataplexy I can't laugh or get tickled about anything, that ran off the rest, no one likes to be around someone who can't have fun and now am only visited by family. I still have my animals, they keep me company alot. But because of the current economy I may have to get rid of them all, as I can't afford to feed them. Our home will have to be sold if we have anymore medical issues. We had hoped to leave it to our children, in hopes of giving them a chance at the "American Dream". So much for life, as it is. My husband is semi-retired, and has aquired diabetes. That requires a new way of eating (Shopping). To eat the way a diabetic should eat costs allot more than the way we used to eat. We have always lived on our own beef, pork, chicken, as well as wild meats. And always had a garden full of vegetables. Now it takes more money for everything. We can't afford to raise our own meat anymore and it cost so much for hunting licenses, and the hunting trip as well. Both of our incomes together is under $2500.00 a month. And we still owe a mortgage at $735. per month. With the cost of utilities it barely leaves enough for food, let alone gasoline or auto repairs. I have become very depressed and don't reeally enjoy life anymore. My children and husband are the only reasons I keep trying. I have always avoided writing in this post because so many people have more and worse problems than I. It just caught me on a bad day. I always wished I could help people that needed help, and now I find myself one of them, with few if any help or answers. Thanks to all who read this, may God bless you, and provide answers for them that have questions. sleepysick

This picture is horrible.This picture is 5 months old. But I wanted to show you how sick I am and the machines that help me breath. I have COPD with emphsema,I am dieabetic I am in a wheelchair when I leave the apartment. I am 50 Years old and have 2 children my daughter is 14 and my son is 12. I am disabled and collecting SS. I am house bound and can not drive and I have no surport from my family. Everyone was with me when they told me my TB test was positive then things went down hill from there. Others illnesses were listed and we then went to disability. This month I had to buy more meds because of a infection Medicaid only pays for 2 to 3 name brands then they have to be no name brands. I had to borrow money to buy the meds. after I pay back the money I will be short to cover my rent after all the other bills are paid. I am on HUD so it isn't the full rent. My portion of the rent is $188.00. Please someone read this I need help.

 

I have add a picture to my profile. I wanted you to see my without the tubes. For when I go to sleep I have a different machine. C-pap. I stop breathing in my sleep. And I have narcolepsy. take care be safe

 

Hi - I am a 34 yr old female and I just lost my husband of 12 years on Jan 19th suddenly - We took him to the Hospital on December 20th and they told us he had Bronchitis 4 weeks later I was signing documentation to turn off life support because my husband had suffered sever heart failure and organ damage due to 2 weeks of internal bleeding.  I have two children one is my late husbands biological son and they other is a stepchild that he always treated and raised as his own. 

I dont work, my husband was the sole supporter in the household - I am unable to work at this time as I suffer from narcolepsy which sometimes is very severe to the point I have 5-6 episodes per day and somedays none.  I dont qualify for disability as the SS administration doesnt feel it's debilitating enough.  I also suffer from vertigo and often fall down.  I feel like I took my husband for granted as I never realized until he was gone just how much he did for me and the kids,  I Loved him more than anything in the world because he always accepted me as I was and never tried to change me in anyway.  I will always love him! 

We have no medical insurance so I also cannot continually go to a doctor to address my illnesses like I would like to do and the local health department wont even address the narcolepsy or vertigo issues whatsoever.

My husband had a small life insurance policy but his mother is the named beneficiary and she has voice her opinion of what she thinks of me and she blames me for his death so I nor our son will ever see a dime of that.  I couldnt even afford funeral arrangements in fact his body is still being stored at $35.00 per day at the local crematory.  Everyone is angry with me because I decided not to have any services and they feel like I'm being disrespectful to his memory, but I cannot go through the extended grief of services nor can I afford anything as like I said I cant even afford to complete the funeral arrangements just yet.  My husband and I had NO friends only a few acquaintences that only came around when they needed something fixed by my husband.  Not one person has come to the house or called since his death.  We were each other's ONLY friends. so I also did not see the point in having services for that matter.  My children and I want to celebrate his life and the time we shared as a family in our own private way.

I cannot even file for disability death benefits as of yet as I need the final death certificate in order to do so which the medical examiner/pathologist told me will be 6-8 weeks so I'm stuck in limbo for almost 2 months not knowing where to turn.  Also I cannot get any state benefits until I prove he is no longer alive which also requires that same death certificate.

I was not prepared for this in anyway, nor did I ever think I would need to "start over" again.  I was happy and in a comfortable marriage which was very loving in everyway.  Now I feel like I've lost my husband, my love, my best friend, my partner, father of my children, my heart and I now have to worry I'm going to lose my home and anything else I may have since I have no income.  When he died we had $70.00 in the bank which is now gone.

I wish I could walk in to a prospective employer and give them all my circumstances and not have them just look at me like I'm crazy for even expecting they would possibly hire me with all my "baggage".  I feel so damaged and lost like I have noone and soon nowhere to turn to.  My phone rang about 50 times today from people all wanting money from me for the household bills, personal bills, and now over $100k in medical bills by the time I add it all together.  I just cant handle it, there has to be some hope.  My groceries will soon run out as well I most likely have enough for about another week and that's it.  My electric will be due in about a week, along w/ my car insurance which if I dont pay then they will suspend my license pending a $250.00 reinstatement fee along w/ proof of valid insurance to restore my priveleges.

Can anyone possibly help me in anyway, please!

I'm gladly able to work from home as then I can deal w/ the sudden need to sleep issues and the dizzy spells but I have yet to find any legitimate opportunities as everything seems like it's a scam and now my email in box is flooded w/ thousands of emails per day from all these companies that want me to send them money I dont have so they can screw me over.  I'm an excellent typist (over 100wpm) I know computers, software, etc.... extremely well but like I said I just havnt been able to get my foot in any doors as of yet as it's my conditions that hinder me and why should they hire someone w/ health issues that can only work a certain set hours over someone that is more flexible and is healthy.

Again Please Help me!

Note: This aidpage was started as a comment on "Home page of LMITCH4"

I CAN NOT PAY MY BILLS!!! PLEASE HELP IF YOU CAN!!! LET ME KNOW IF YOU ARE INTERESTED AND I WILL GET YOU AN ADDRESS TO SEND ANY DESIRED ASSISTANCE. GOD BLESS,

I am a working mom and homemaker trying my best to take care of my family. I have Narcolepsy which is a sleeping disorder where I have an EXTREMELY hard time staying awake while performing everyday activities like driving and working. I would appreciate ANY financial assistance to help me pay for the medicine I NEED in order to continue living a happy, normal life.

 

thanks